Whilst the VPS is keen to encourage women suffering with vulvodynia to actively participate in research whenever possible, we would advise that any such participation is at your own risk. Where the research is of a practical or physical nature such as the trialling of drugs or other physical therapies, we strongly urge you to consult your GP or other medical practitioner before signing up, in order to ensure your own safety and compatibility with your existing treatment plan. With online studies, the VPS cannot take any responsibility for the security of the details you provide in internet surveys, and we recommend you contact the researcher directly if you need more information about arrangements for data protection. Queries or concerns about other aspects of the studies should also be raised directly with the researcher, as they will be best placed to answer them.
More information about participating in research
For more information about the research process itself and what’s involved if you participate in a study, please visit the NHS website.
Searchable online databases of studies and clinical trials
If none of the studies listed below are suitable or of interest, you may be able to find others by searching these databases:
- National Institute for Health Research
- the World Health Organisation’s International Clinical Trials Registry Platform (ICTRP)
These databases list studies which are taking place all over the world and in various languages (including English), so do bear this in mind when you do your search.
Current studies needing participants
The studies listed below are actively looking for English-speaking participants from the UK and, in the case of the international studies, other countries as well.
*We are grateful to the National Vulvodynia Association for their permission to reproduce these studies from the NVA website.
Alleviate – creating a hub for pain research data
The Alleviate project is creating a data hub for pain research. They are looking for people in the UK living with any type of pain, or a carer of someone with pain. People who are interested to learn more about the project are invited to join the Alleviate online pain community. You can sign up to their email newsletters and learn about involvement opportunities here: http://eepurl.com/hQjfO9
Further information can be found at https://www.hdruk.ac.uk/helping-with-health-data/health-data-research-hubs/alleviate/
Heriot-Watt University (Edinburgh, UK)
Subject: Intersection of gender and disability in women living with chronic pain in the high-tech sector: a comparative study of Scotland and Peru
Details of study: María de los Angeles is a Peruvian doctoral researcher in Human Resources at Heriot-Watt University in Edinburgh who is researching the employment experiences of people living with chronic pain in Scotland.
She is currently collecting data by interviewing people who live with this chronic condition as well as employers (managers, HR leads, among others).
Requirements: To participate in this study, you should be living, working or based in Scotland and be either:
a) In employment or looking for employment in STEM* sector/careers and living with chronic pain (associated with any other condition or not, e.g. arthritis, fibromyalgia, neuropathies, back pain, among others);
b) A team leader or manager (a person in charge of organisational practices), or an HR, diversity or occupational health specialist;
c) A disability-related organisation;
d) A gender equality-related organisation.
*Science, technology, engineering and mathematics
Participation in the study will involve a 30-45 minute interview either via Zoom, Skype or MS Teams or over the telephone, as desired, at a time which is convenient for you. If you decide to take part in this research, the researcher will be more than happy to share her feedback and results after she has finished analysing the data. Whether you are an employee, employer or policy maker, this information could be relevant and help you to improve your work environment.
Website: Further information about this study can be found on the researcher’s website at https://powerfulemployment.wordpress.com.
(Correct as at 5 May 2021)