The studies listed below are actively looking for English-speaking participants from the UK and, in the case of the international studies, other countries as well.
Whilst the VPS is keen to encourage women suffering with vulvodynia to actively participate in research whenever possible, we would advise that any such participation is at your own risk. Where the research is of a practical or physical nature such as the trialling of drugs or other physical therapies, we strongly urge you to consult your GP or other medical practitioner before signing up, in order to ensure your own safety and compatibility with your existing treatment plan. With online studies, the VPS cannot take any responsibility for the security of the details you provide in internet surveys, and we recommend you contact the researcher directly if you need more information about arrangements for data protection. Queries or concerns about other aspects of the studies should also be raised directly with the researcher, as they will be best placed to answer them.
Searchable online databases of studies and clinical trials
If none of the studies listed here are suitable or of interest, you may be able to find others by searching the databases contained at NHS Choices Clinical Trials and the UK Clinical Trials Gateway, or alternatively, at the ISRCTN registry. NHS Choices also provides a great deal of very useful information about the research process itself, including safeguards for participants, plus real life stories from people who have participated in research.
*We are grateful to the National Vulvodynia Association for their permission to reproduce these studies from the NVA website.
Heriot-Watt University (Edinburgh, UK)
Subject: Intersection of gender and disability in women living with chronic pain in the high-tech sector: a comparative study of Scotland and Peru
Details of study: María de los Angeles is a Peruvian doctoral researcher in Human Resources at Heriot-Watt University in Edinburgh who is researching the employment experiences of people living with chronic pain in Scotland.
She is currently collecting data by interviewing people who live with this chronic condition as well as employers (managers, HR leads, among others).
Requirements: To participate in this study, you should be living, working or based in Scotland and be either:
a) In employment or looking for employment in STEM* sector/careers and living with chronic pain (associated with any other condition or not, e.g. arthritis, fibromyalgia, neuropathies, back pain, among others);
b) A team leader or manager (a person in charge of organisational practices), or an HR, diversity or occupational health specialist;
c) A disability-related organisation;
d) A gender equality-related organisation.
*Science, technology, engineering and mathematics
Participation in the study will involve a 30-45 minute interview either via Zoom, Skype or MS Teams or over the telephone, as desired, at a time which is convenient for you. If you decide to take part in this research, the researcher will be more than happy to share her feedback and results after she has finished analysing the data. Whether you are an employee, employer or policy maker, this information could be relevant and help you to improve your work environment.
Website: Further information about this study can be found on the researcher’s website at https://powerfulemployment.wordpress.com.
(Correct as at 5 May 2021)
University of Sheffield (Sheffield, UK)
Subject: Can a 1-week online writing intervention improve body image in adults living with a dermatological condition?
Contact: Dr Kate Adkins (Trainee Clinical Psychologist) Department of Psychology, University of Sheffield, Floor F, Cathedral Court, 1 Vicar Lane, Sheffield. S1 2LT. Email: firstname.lastname@example.org
Details and requirements: Do you have a vulval skin condition that affects how you feel about your body? If so please consider taking part in my research.
I am running an online Randomised Controlled Trial to test whether or not a brief online writing intervention could improve body image in adults with a range of conditions that affect the skin, including conditions that affect the vulva. This approach has already shown positive outcomes in women with body image concerns, and women with rheumatoid arthritis. The study has been designed with the input of several experts by experience living with a range of dermatological conditions.
To participate in this study, you will need to be aged 18 or over and live with a skin condition (e.g. lichen planus, lichen sclerosus, vulval intraepithelial neoplasia (VIN), cysts, herpes or dermatitis/eczema) which negatively affects how you feel about your body. Participation will involve completing three 15-minute writing exercises over the course of a week, as well as completing questionnaires about your condition and body image (before the first writing exercise, after the last writing exercise and one month later). The focus of the writing tasks will depend on whether you are randomly allocated to the intervention or an alternative set of writing tasks. At the end of the study you will be told whether you were allocated to the intervention or control. All participants completing the study will be able to download the intervention and enter a prize draw for a £50 voucher.
Your responses will be anonymous and the study has been granted ethical approval by the University of Sheffield.
Website: You can read more and take part via: https://sheffieldpsychology.eu.qualtrics.com/jfe/form/SV_5avZMk39cP4xCcd
Please get in touch via email (email@example.com) if you have any questions, are unsure of whether you meet the criteria, or want any further information.
(Correct as at 19 January 2021)