Research needing participants
Important!
Whilst the VPS is keen to encourage women suffering with vulvodynia to actively participate in research whenever possible, we would advise that any such participation is at your own risk. Where the research is of a practical or physical nature such as the trialling of drugs or other physical therapies, we strongly urge you to consult your GP or other medical practitioner before signing up, in order to ensure your own safety and compatibility with your existing treatment plan. With online studies, the VPS cannot take any responsibility for the security of the details you provide in internet surveys, and we recommend you contact the researcher directly if you need more information about arrangements for data protection. Queries or concerns about other aspects of the studies should also be raised directly with the researcher, as they will be best placed to answer them.
More information about participating in research
For more information about the research process itself and what’s involved if you participate in a study, please visit the NHS website.
Searchable online databases of studies and clinical trials
If none of the studies listed below are suitable or of interest, you may be able to find others by searching these databases:
- National Institute for Health Research
- ISRCTN
- the World Health Organisation’s International Clinical Trials Registry Platform (ICTRP)
These databases list studies which are taking place all over the world and in various languages (including English), so do bear this in mind when you do your search.
Current studies needing participants
The studies listed below are actively looking for English-speaking participants from the UK and, in the case of the international studies, other countries as well.
*We are grateful to the National Vulvodynia Association for their permission to reproduce these studies from the NVA website.
University of the West of England (Bristol, UK)
Oxford Brookes University (Oxford, UK)
University of Buckingham (Buckingham, UK)
University of Oxford (Oxford, UK)
Read the text version of this flyer from the University of Oxford for their study on sexual pain
Brunel University London (London, UK)
Read the text version of this flyer from Brunel University London for their study on pelvic pain
University of Stirling (Stirling, UK)
University of Illinois Chicago (Chicago, Illinois, USA)
Maastricht University (Maastricht, The Netherlands)
Read the text version of this Maastricht University flyer for study on genital pain in daily life
Alleviate – creating a hub for pain research data
The Alleviate project is creating a data hub for pain research. They are looking for people in the UK living with any type of pain, or a carer of someone with pain. People who are interested to learn more about the project are invited to join the Alleviate online pain community. You can sign up to their email newsletters and learn about involvement opportunities here: http://eepurl.com/hQjfO9
Further information can be found at https://www.hdruk.ac.uk/helping-with-health-data/health-data-research-hubs/alleviate/
