Welcome to the Vulval Pain Society, a UK registered charity supporting vulval pain sufferers.
Our aims are:
To promote and protect the physical and mental health of sufferers of vulval pain through the provision of support, education and practical advice
To advance the education of the general public in all areas relating to vulval pain
We offer advice and information on all vulval pain matters. You can read detailed information about vulvodynia, vestibulodynia (previously known as vulval vestibulitis), lichen sclerosus, and other vulval pain conditions. We also have information on sex and vulval pain, pregnancy and vulval pain, and other general good advice.
UPDATE: Liverpool University vulval pain study
We are pleased to be able to report that this study, 'Vulval pain: the journey to diagnosis', which explores women's psychological journey from first symptoms of vulval pain to a formal diagnosis, has had sufficient participant response for analysis and is therefore now closed. Further news and updates on the work will be posted here and on our Older studies page once these are available.
UPDATE: Coventry University unprovoked vulvodynia study
Please note that this online study, which examines UK patients' experiences of accessing treatment for unprovoked vulvodynia, has finished data collection and analysis and is therefore now closed. We will provide details of the results of the study here and on our Older studies page as soon as these are available.
Talking helps skin
Consultants insist it really works but can talking about your emotions clear up bad skin? This article appeared in the Daily Mail on 23 January 2012, highlighting a new approach to skin conditions.
Painful Sex vs 'Normal' Sex: The Differences Explained With Food
Women4Real have recently released a short video which was made to raise awareness of vulvodynia and painful sex. The video has been made independently of the Vulval Pain Society (VPS) by Sally Turner and Sabine Tyrvainen, who run Women4Real.
You can view Women4Real's film on YouTube here:
Listen to 'Airing Pain: The power of the mind' podcast
UK pain charity Pain Concern produce Airing Pain, a series of audio podcasts dealing wtih different aspects of pain from both the patient's and the health professional's perspectives. Listen to Programme 47: The power of the mind, which looks at new techniques using both the brain and the mind to control pain. You might also be interested in the many other programmes available in the series. All the podcasts can be played online, or downloaded from the site for later use. Transcripts are available for some of the programmes as well. Happy listening!
Journey through Pudendal Neuralgia
Margaret Stubbs, who suffers from pudendal neuralgia (a form of pelvic nerve pain), has written a book, Journey through Pudendal Neuralgia, about her personal experience of the condition, including the various treatments she has tried. For further details about the book, including where to obtain it, read on...