Providing information to vulval pain sufferers and their partners

Participants needed for study examining shared decision making in chronic pain (University of the West of Scotland, Paisley, Scotland, UK)

PhD student Abbie McGuire is currently recruiting for her questionnaire study and needs individuals who experience chronic pain (exceeding 12 weeks even with treatment). Abbie's work is examining the ways shared decision making may help individuals with chronic pain. Her survey will take 30-40 minutes to complete but does not have to be done in one sitting.

For further details about the study, please see our Current research page.

Participants needed for study looking at the impact of vulval pain conditions on women's sense of gender, health and wellbeing (University College London, London, UK)

A final year undergraduate student from University College London is looking to interview people who support women with vulval pain for an anthropology research project. The study will be looking at vulval pain conditions and how they impact upon women's sense of gender, health and wellbeing.

For further details about the study, please see our Current research page.

Bristol Vulval Health Support Group - first meeting on Saturday 18 January 2020, 10.30 am

A new group has been set up in Bristol which aims to support women with a range of vulval health conditions, including lichen sclerosus and vulvodynia. Further information can be found on the Bristol Vulval Health Support Group's website at https://sites.google.com/view/bristolvhsg.

The group's first meeting will be on Saturday 18 January 2020, 10.30 am at a venue near Redland station in Bristol. For further details about the venue, please email the administrator at This email address is being protected from spambots. You need JavaScript enabled to view it. .

Welsh Marches Vulval Pain Support Group - notice of new address

Please note that the Welsh Marches Vulval Pain Support Group, which covers the areas of East Wales, Cheshire, Shropshire and Hereford, now has a new address.

The administrator for the group has asked us to pass on the following information:

'The Welsh Marches Vulval Pain Support Group is now much easier to join - simply go to https://groups.io/g/wmvpsg.

I look forward to accepting your requests to join.'

Participants needed for study exploring the physical and psychological experiences and sexual function of women with vulvodynia (King's College London, London, UK)

Vulvodynia can have a big impact on a person’s life. It can affect the way women think and feel and the activities they do.

King's College London are looking for participants in an online questionnaire-based study whose purpose will be to explore the psychological experience, pain experience and sexual function of women with vulvodynia.

In order to participate in this study you will need to have a diagnosis of vulvodynia by a health professional, be 18 years or older and not be currently pregnant.

Full details of the study are given on our Current research page.

Participants needed for study to develop practitioner guidelines on communication about the psychological aspects of vulvodynia (University of Nottingham, Nottingham, UK)

The University of Nottingham are looking for participants for a study which is aimed at understanding the views of women and practitioners on communicating about the psychological aspects and impact of vulvodynia, and then producing guidelines to support practitioners in this communication.

To participate in the study, you should either be a patient with a diagnosis of vulvodynia, or a practitioner who works with women with vulvodynia, either in the management of the condition or by referring on to specialist services.

For full details of the study, please see our Current research page.